Statewide Planning and Research Cooperative System (SPARCS)

SPARCS is a comprehensive all payer data reporting system, initially created to collect information on discharges from hospitals. SPARCS currently collects patient level detail on patient characteristics, diagnoses and treatments, services, and charges for each hospital inpatient stay and outpatient (ambulatory surgery, emergency department, and outpatient services) visit; and each ambulatory surgery and outpatient services visit to a hospital extension clinic and diagnostic and treatment center licensed to provide ambulatory surgery services.

Social Security Death Master File (SSDMF)

The Limited Access DMF (DMF) from the Social Security Administration (SSA) contains over 86 million records created from SSA payment records. This file includes the following information on each decedent, if the data are available to the SSA: social security number, name, date of birth, date of death. The SSA does not have a death record for all persons; therefore, SSA does not guarantee the veracity of the file. Thus, the absence of a particular person is not proof this person is alive. SSDMF database is updated once a week.

SEER*Stat

The SEER*Stat statistical software provides a convenient, intuitive mechanism for the analysis of SEER and other cancer-related databases. It is a powerful PC tool to view individual cancer records and to produce statistics for studying the impact of cancer on a population. SEER*Stat software is distributed with the SEER Research Data and you must have access to the data before using the software.

SEER-Medicare

The SEER-Medicare data reflect the linkage of two large population-based sources of data that provide detailed information about Medicare beneficiaries with cancer. The data come from the Surveillance, Epidemiology and End Results (SEER)External Web Site Policy program of cancer registries that collect clinical, demographic and cause of death information for persons with cancer and the Medicare claims for covered health care services from the time of a person's Medicare eligibility until death.

New York City Clinical Data Research Network (NYC-CDRN)

The New York City Clinical Data Research Network (NYC-CDRN) has been established to improve and streamline research in an effort to advance patient-centered research. NYC-CDRN uses a large volume of robust, high-quality patient data and support services from a collaboration of more than 20 partners, including WCM and NYP. The NYC-CDRN collects comprehensive medical histories for what will be as many as 6 million patients. 

National Health and Nutrition Examination Survey (NHANES)

The National Health and Nutrition Examination Survey (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The survey combines interviews and physical examinations. NHANES is a major program of the National Center for Health Statistics (NCHS), which is part of the Centers for Disease Control and Prevention (CDC).

Medicare Claims and Enrollment

Medicare is the federally funded program that provides health insurance for the elderly, persons with end-stage renal disease, and some disabled. For persons age 65 and over, 97 percent are eligible for Medicare. Almost all Medicare beneficiaries have Part A coverage that includes hospital, skilled-nursing facility, hospice and some home health care. Information about Medicare eligibility and enrollment is available for all persons included in the SEER-Medicare data (both cancer and non-cancer cases). Medicare claims (bills) are available only for persons with fee-for-service coverage.

i2b2

i2b2 enables researchers to discover cohorts of patients using data from EHR systems.  Through a point-and-click interface, researchers can build queries drawing from demographics, diagnoses, procedures, medications, and results recorded in Epic, the EHR system of Weill Cornell Physician Organization outpatient clinics (access to data from Eclipsys/Allscripts Sunrise Clinical Manager, the EHR system of NewYork-Presbyterian inpatient units, is planned).  i2b2 supports different types of queries of clinical data, including whether clinical concepts occurred at any point in a patient’s medical

BioCyc

"BioCyc.org is a microbial genome Web portal that combines thousands of genomes with additional information inferred by computer programs, imported from other databases and curated from the biomedical literature by biologist curators. BioCyc also provides an extensive range of query tools, visualization services and analysis software." (Karp et al., 2019)

ArcGIS

ArcGIS is a geographic information system (GIS) for working with maps and geographic information. The license is valid until September 1st each year.